Living with ALS

Daily needs differ from person to person. Care should be individualized and adjusted over time.

Nutrition

Maintaining weight is important. Smaller, more frequent meals and dietitian support may help when eating becomes tiring.

Swallowing

Choking, coughing during meals or weight loss should prompt assessment by a speech-language therapist or physician.

Speech and communication

Speech may become slower or less clear. Early planning for communication tools can preserve independence.

Breathing

Morning headaches, poor sleep, shortness of breath or weak cough should be discussed with a medical team. NIV may help selected patients.

Physical therapy

The goal is safe movement, stretching, prevention of contractures and fatigue-aware activity.

Occupational therapy

Helps adapt daily tasks, home environment and assistive devices.

Assistive devices

Canes, walkers, wheelchairs, braces, bathroom equipment and communication devices can improve safety and independence.

Psychological support

Support for the person and family is an important part of care, not a sign of weakness.

Practical advice